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Quality of Life Perspectives of People With Amyotrophic Lateral Sclerosis and Their Caregivers/ Stephanie Johnson; Bryant Alonso; Katie Faulkner; Haley Roberts; Britton Monroe; Leigh Lehman; Pamalyn Kearney

Creator: Johnson, Stephanie.
Creators: Alonso, Bryant | Faulkner, Katie.
Material type: ArticleArticleISSN: 02729490.Subject(s): Teràpia Ocupacional | Rehabilitació neurològica | Esclerosi lateral amiotròfica | Qualitat de vida | CuidadorsOnline resources: Accés restringit usuaris EUIT In: American Journal of Occupational Therapy 2017 MAI-JUN; 71(3): 7103190010p1-7103190010p7.Summary: This study explored differences in perspectives on quality of life (QOL) between people affected by amyotrophic lateral sclerosis (ALS) and their caregivers. QOL is often thought of as related to physical limitations, without consideration of other factors (e.g., cognitive, emotional) that may be stronger predictors of QOL in people with long-term degenerative diseases. Because QOL is complex and influenced by multiple factors, people with ALS and their caregivers may have different perspectives on what constitutes QOL. This study investigated potential discrepancies in QOL perspectives between people with ALS and their caregivers. Thirty dyads from the Augusta University Health ALS Clinic completed a measure of QOL, and we compared the results and identified patterns. The most prominent finding was that members of the dyads misunderstood the mental experiences of one another. Tags: amyotrophic lateral sclerosis, caregiver, quality of life, emotion
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Journal article Journal article Escola Universitària d'Infermeria i Teràpia Ocupacional de Terrassa Internet En línia Text complet Not for loan 0000003364772

Special issue on: Occupational Therapy's Role in Neurorehabilitation

English

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